Hi Everyone,
It's been a very trying 10 days because it's hard to send news when there isn't any - except Leenie's arm & shoulder are very uncomfortable and we're waiting for test & treatment appointments.scheduling
Well, MUCH to Dr. Cross' distress, his person screwed up - twice. He ordered an appt. with the Cyber Knife doc to get rid of the pain. They saw "radiation/oncology" & made an appt. with the doc who did her initial radiology. Then, he ordered the critical CT & PET scan last week so he could see whether the cancer is shrinking on this regimen or Leenie needs different chemo. Of course Cyber Doc can't just aim & fire so a CT showing where the mass tissue is pressing on C5 & causing the pain would have dramatically improved his marksmanship.
Well yesterday his nurse practitioner got in touch with Cyber Doc's nurse who, knowing there had been a delay & protracted pain, fit Leenie in Friday, the 26th. (Of course Friday is the 27th but we'll get that straight in the morning). Then Phil took a call from the PET scan folks and she has an appt. for that on March 9.
That leaves the CT which would be so helpful. We are hoping that will be done tomorrow.
It's also possible that since her only pain is from the compressed nerve, her wt. is stable, she has no new complaints and wants to "get on with it", he'll keep her Monday morning chemo appt and proceed with the same regimen. We'll HAVE to have input on that tomorrow or we'll not know where to go Monday & for what. Sooo, I see a page to Dr. Cross in the cards tomorrow if we don't get updated re: CT &/or Monday's plans. Hope you all had a great Fat Tuesday. Leenie put away a peppered strip steak (med-rare) potatoes & cheesecake with chocolate syrup. Loved it. Will let you know what the next 2 days bring. . . .
Lorane
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